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Young woman seeks help for chronic pain condition

Mairead Keen raises funds for unapproved therapy after losing support from NHS.

July 28, 2025 at 02:47 PM
blur 'Chronic pain put my future on hold - I want the chance to take my life back'

Mairead Keen suffers from a severe chronic pain condition that hinders her daily life.

Chronic pain limits future for young woman seeking relief

Mairead Keen, a 22-year-old woman living with Complex Regional Pain Syndrome (CRPS), shares her struggles with managing debilitating pain for eight years. Diagnosed following a viral infection at age 14, Mairead feels that her future has been stolen by this condition, experiencing constant agony described as "walking on glass." Initially, she received substantial support from the NHS, including therapies and psychiatric care. However, upon reaching adulthood, much of that support vanished. Her mother, Marie Keen, lamented the lack of available resources for chronic pain sufferers in Scotland. Now, Mairead is fundraising for an alternative treatment called Calmare Therapy, which the NHS has not approved due to doubts about its efficacy. She hopes this therapy, widely available in other countries, may restore her ability to lead a normal life, including the chance to build a family and career.

Key Takeaways

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Mairead has lived with CRPS for eight years and feels her life has been stolen.
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Transitioning to adult care left her without vital support services.
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Mairead's pain is described as exceptionally intense, impacting her daily activities.
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She is pursuing Calmare Therapy, which is not yet NHS-approved.
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The NHS's hesitance reflects broader issues in chronic pain treatment availability.
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Public health minister pledges to improve support for chronic pain sufferers.

"That has all been ripped away from me. Now I live on painkillers."

Mairead describes the impact of her chronic pain diagnosis on her life.

"My daughter is 22, but she feels like an 80-year-old."

Marie Keen highlights the severe effects of chronic pain on her daughter's life.

"I am determined to improve care and support for people living with chronic regional pain syndrome."

Public health minister Jenni Minto speaks on government efforts to enhance support.

"We researched scrambler therapy, and it had a success rate between 80% to 90%."

Mairead discusses her hopes for alternative therapy options to relieve her condition.

Mairead's experience reflects a broader issue facing many individuals with chronic pain conditions. The transition from pediatric to adult healthcare often strips away necessary support systems, leaving patients to navigate their struggles alone. The lack of NHS acceptance for emerging therapies, like Calmare Therapy, demonstrates a gap in healthcare innovation where patients seek options not offered within their national health services. This situation raises important questions about how we care for chronic pain patients and the adequacy of existing healthcare frameworks to address their needs.

Highlights

  • Chronic pain feels like my life was stolen from me.
  • I want to live a normal life again without constant agony.
  • There is just no help out there for people like me.
  • Calmare Therapy is my last chance to regain control.

Concerns Over Support for Chronic Pain Patients

Critics argue that the healthcare system in Scotland leaves chronic pain patients without adequate support and treatment options, leading to dissatisfaction and calls for change.

The future of chronic pain management still hangs in the balance as voices like Mairead's demand change.

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