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Young man battles rare cancer as treatment options dwindle

Alex Able, 30, faces dire choices after doctors halted his cancer treatment.

August 3, 2025 at 12:27 PM
blur Man, 30, suffered gym pain, then doctors asked where he'd like to die

Alex Able faces a challenging fight against a rare cancer diagnosis after treatment options were limited.

Young man battles rare cancer as treatment options dwindle

In a heartbreaking turn of events, 30-year-old Alex Able has found himself fighting a rare form of cancer known as a Rhabdoid tumour. Diagnosed in mid-2024, the disease primarily affects children but has struck Alex, leaving his family grappling with devastating decisions about his care. The diagnosis came after months of shoulder pain, initially dismissed as related to his gym routine. Despite surgery to remove most of the tumour and aggressive treatments like chemotherapy and radiotherapy, new growths have appeared. With treatment being halted as his condition worsens, Alex now faces where he would like to spend his final days. His family has initiated fundraising efforts for alternative treatments and has connected with specialists in Germany, hoping for a breakthrough.

Key Takeaways

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Alex Able, 30, diagnosed with a rare Rhabdoid tumour, faces tough treatment decisions.
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His cancer primarily affects children, making his case exceptionally rare as an adult.
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Surgery removed 90% of his tumour, but new growths have complicated his condition.
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As treatment options dwindle, Alex's family contemplates where he will pass.
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They launched a GoFundMe to seek alternative treatments outside the NHS.
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Despite setbacks, Alex remains hopeful and determined to overcome his illness.

"Our world came crashing down around us."

Alex's mother-in-law reflects on the devastating moment of his diagnosis.

"He's comfortable and well looked after, but his condition is getting worse."

Katie describes the reality of managing Alex's symptoms as treatment halts.

"We've gone from the darkest place to now, there's some light at the end of the tunnel."

Katie shares the family's renewed hope after connecting with specialists.

"Alex is absolutely over the moon, and he's raring to go again."

Katie expresses Alex's determination after hearing about new treatment options.

Alex's story underscores the broader issue of how medical systems handle rare diseases and the dependency on conventional treatments that sometimes lack effectiveness. The emotional toll on not just the patient but the entire family reflects a stark reality faced by many in similar situations. This case raises questions about how healthcare systems prioritize rare diseases and the need for more research and clinical trials focusing on treatments that could save lives. Alex's fight illustrates the personal struggle behind every statistic; it is a reminder that each individual facing serious illness has their dreams and hopes, making the fight against such devastating conditions more poignant.

Highlights

  • Every day is a new fight for survival.
  • We will never give up on Alex because he's so determined to live.
  • His journey represents hope against all odds.
  • Alex is determined to be a pioneer for others suffering from this disease.

Sensitive treatment decisions add emotional stress

The situation reflects the challenges patients face with rare cancer treatments and the emotional burden on families when options are limited. Alex's condition raises significant issues regarding healthcare resource allocation and support for rare diseases.

Alex's resilience shines a light on the struggles faced by many battling rare cancers.

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