favicon

T4K3.news

Engineer diagnosed with rare cancer

Alex Able, 30, faces a rare and aggressive Rhabdoid tumour diagnosis after initial misdiagnosis.

August 3, 2025 at 09:43 AM
blur Man, 30, who put shoulder pain down to gym aches asked 'where'd you like to die'

Alex Able faced a devastating cancer diagnosis after ignoring shoulder pain.

Young engineer confronted with rare cancer diagnosis

At just 30 years old, Alex Able, an engineer from Kent, learned he had a rare and aggressive form of cancer known as a Rhabdoid tumour. Initially dismissing shoulder pain as a gym-related injury, Alex sought medical help when the discomfort persisted. An MRI scan gave false reassurance with normal results in late 2023, but by May 2024, a significant growth was discovered. Despite surgery to remove most of the tumour, it later returned, necessitating intensive treatment. Tragically, by July 2025, doctors informed him that the cancer was now uncontrollable, and discussions about end-of-life care began. Despite the grim prognosis, Alex's family sought alternative treatment options, remaining hopeful for his future.

Key Takeaways

✔️
Alex Able's story emphasizes the need for better awareness of rare cancers.
✔️
Misdiagnosis can lead to severe consequences for patients suffering from uncommon diseases.
✔️
Alternative treatment options outside the NHS are crucial for conditions like Rhabdoid tumours.
✔️
Community support plays a vital role in funding medical treatments.
✔️
The emotional toll on families facing such diseases can be profound and lasting.
✔️
Hope remains vital, even in the face of dire medical prognosis.

"Our world came crashing down around us."

Alex's mother-in-law shared the family’s initial reaction to his diagnosis.

"He's going to be the one success case and hopefully a pioneer for children with this awful disease."

Katie spoke about Alex's determination to overcome his challenges.

The experience of Alex Able highlights a disturbing reality about rare cancers, particularly in young adults. His initial misdiagnosis reflects a broader issue where common symptoms are misattributed to less serious conditions. As the medical community grapples with similar cases, it raises important questions about how healthcare providers can better identify and treat rare diseases early. The family's actions demonstrate resilience and the dire need for innovative treatments in the fight against rare cancers. Alex’s determination to explore alternative therapies underscores the urgency in addressing such uncommon but devastating health issues.

Highlights

  • Hope shines through even the darkest moments.
  • Every day is a fight, but we're not giving up.
  • In the face of rare diseases, resilience becomes a lifeline.
  • Finding treatment options gives us renewed hope.

Sensitive diagnosis and treatment issues

Alex's story sheds light on the difficulties faced by patients with rare cancers, including misdiagnosis and limited treatment options. This highlights ongoing systemic issues in healthcare regarding awareness and resource allocation for rare diseases.

Alex’s journey illustrates the ongoing fight against rare cancers and the importance of support.

Enjoyed this? Let your friends know!

Related News