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Wales man shares struggles with Lyme disease
Steven Williams spent £150,000 on treatment for Lyme disease after a tick bite.

Steven Williams shares his struggles with Lyme disease and high medical costs.
Man battles Lyme disease after tick bite in Wales
Steven Williams, a 39-year-old man from Bridgend, Wales, is struggling with Lyme disease after a tick bite in March 2021. His life changed significantly as he faced severe anxiety, depression, and various physical health issues. Despite spending approximately £150,000 on international private healthcare, he has only reached a health status that he describes as four out of ten. Williams argues that the short two-week antibiotic course provided by the NHS was ineffective at his disease's advanced stage. His fight for recovery has seen him travel worldwide for treatments, including intravenous therapy in Germany and immunoglobulin therapy in India. However, he remains far from his previous active life, relying on a limited diet and minimal activities.
Key Takeaways
"I just want to regain some of my old quality of life."
A reflection on the drastic changes to daily life after his illness.
"Since March 2021, although my symptoms have waxed and waned, I've never felt better than a four out of 10."
Expressing the ongoing struggles with his health despite medical efforts.
"The NHS is an amazing institution, but the system is too rigid."
Commenting on limitations he faced within the public healthcare system.
"I knew something was not right and that my symptoms weren't characteristic of me."
Describing the initial confusion and fear surrounding his diagnosis.
Williams' experience highlights a troubling gap in healthcare for complex conditions like Lyme disease. His journey underscores the limitations of standard treatment protocols and raises broader questions about access to advanced medical options. With public healthcare often unable to adapt quickly to individual needs, patients like him may be forced into a cycle of expensive private care, which is not feasible for everyone. His story reflects the urgent need for better awareness and resources regarding tick-borne illnesses within public health systems.
Highlights
- Health really is wealth; I'm so grateful for the support.
- Since my diagnosis, I've never felt better than a four out of ten.
- I have to live such a robotic life just to feel semi-normal.
- It's scary when you can't even watch TV or listen to music.
High financial burden from medical treatment
Steven Williams has spent nearly £150,000 on private healthcare, raising concerns about the accessibility of effective treatments through standard NHS care.
This ongoing battle against Lyme disease highlights the need for improved public health responses to tick-borne infections.
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